ASH 2016: Patient Perspective with Cindy Chmielewski

| Cindy Chmielewski

In this video, patient advocate and active member of the Philadelphia Multiple Myeloma Networking Group Cindy Chmielewski says that she “couldn’t imagine how this year’s meeting could compare to last year’s ASH, or the ‘November to Remember.’” She points out drugs she learned about at this year’s meeting used to treat relapsed/refractory multiple myeloma patients: […]

ASH 2016: Patient Perspective with John Auerbacher

| John Auerbacher

In this video, co-leader of the White Plains/Westchester (NY) Multiple Myeloma Support Group and myeloma patient John Auerbacher says this about the 58th American Society of Hematology meeting: “If ever we worried there would be enough researchers in multiple myeloma, we would be wrong.” He comments that while attending meetings with the depth and intricacy […]

Final impressions of ASH 2016

| Jim Omel

In comparing this year’s large ASH meeting to previous years, we support group leaders continued to see lots of myeloma interest and research. Myeloma sessions were full with some overflowing even the overflow room! Myeloma was especially exciting at last year’s ASH because it closely followed an unparalleled “November to Remember” with three new drug […]

Summary of ASH 2016

| Jack Aiello

Before presenting my ASH summary, I’ll mention a late-breaking abstract presentation that I attended early this morning focused on different transplant regimens. This was a large trials (750 newly diagnosed multiple myeloma patients) randomly divided into three arms. Arm 1, denote ACM, received one autologous stem cell transplant (ASCT), four cycles of Velcade-Revlimid-dexamethasone consolidation, then […]

Turning hope into action

| Tiffany Williams

My goal coming to ASH16 was to inspire and offer hope through blogging and tweeting my experience. As a first time attendee, it was overwhelming to keep up with all the promising data and findings, but the message was clear. If you are a newly diagnosed patient with myeloma, know that we have champions in […]

ASH: The ultimate bowl game

| Linda Huguelet

At my first ASH conference in 2012, I happened to meet Frank who was working in the Takeda Oncology exhibit booth. He led me through the process of adding a wish to their wall and mine was, of course, to cure myeloma. In talking, we discovered that we are both Auburn University alumni. For those […]

ASH 2016: Support Group Perspective with Robin Tuohy

| Robin Tuohy

In this video, the IMF’s Senior Director of Support Groups points out the number of new classes of myeloma drugs that are in the pipeline. From ASH 2016, she is able to go home to a support group she co-leads in Connecticut and share the viability of stem cell transplants for patients over the age […]

ASH 2016: Patient Perspective with Thomas Goode

| Thomas Goode

When Thomas Goode arrived at the 58th American Society of Hematology annual meeting, he felt “mesmerized” and was not sure “how he would accept it all.” He leaves realizing that he is now, not just a myeloma patient, but an active advocate armed with information. Near the end of this video, he expresses his gratitude […]